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What’s It All About, Alfie?

For the second time within a year, England has a high-profile case of court-mandated murder of a desperately ill child. The first was Charlie Gard, and now comes Alfie Evans.

Alfie missed several developmental milestones in his first seven months of life, which did not alarm physicians at the time. It’s not known precisely what his neurodegenerative disorder is, and some say it may be something akin to Charlie Gard’s Mitochondrial Depletion Syndrome (MDS). That’s key to understanding the full horror and depravity of the English judiciary in this case, as well as that of the National Health Service (NHS).

While the English physicians are quite certain that Alfie cannot recover, they do not know what they are facing. They are so possessed of medical certitude that they have not only sought to end life-sustaining treatment, but have argued against the boy being brought abroad for treatment.

Why?

And why the complicity of the courts?

And since when are parental rights to seek treatment for their desperately ill children abrogated by the physicians who can’t even identify the disease, and the courts with no evidence of incompetence on the part of the parents?

What’s worse is that the global narrative has shifted from arguing over whether a patient is still alive, cardiac vs. brain death, to arguing that they have no hope of recovering their former functionality and quality of life. In other words we are now squarely within Eugenics and Euthanasia.

This particular expression of euthanasia is actually First Degree Murder. When Alfie’s ventilator was removed, along with oxygen, food, and hydration, Alfie breathed on his own, and continues to breathe on his own. After several hours of fighting with staff, Alfie was given oxygen and hydration. At this writing,more than 48 hours later, he continues to live, and the courts have determined that he may not be taken abroad.

Alfie. MUST. Die.

The police ringing the building are a frightening testimony to this malignant judicial resolve.

The courts have stated that parents understandably want to hang on after hope has been lost. Tragically, there are far too many physicians, nurses, and judges who have never understood that hope is the irrational driving force behind many medical and scientific breakthroughs.

Take cancer for example. Hope drives cancer research, and the trillions of dollars and hundreds of millions of researcher hours over the past half-century. Looking at the daunting challenge in the 1950’s, before we knew anything about DNA and its role in cancer, how irrational would it have sounded if trillions of dollars, and millions of collective years of research would be required to cure this umbrella group of diseases? Yet, here we are, with many cancers either curable, or with outstanding five-year remission rates. A similar story could be told of HIV/AIDS, and the fact that it is a very manageable disease today.

Imagine if the pessimists were in the driver’s seat at the outset. As the AIDS quilt tells the tale, a frightening number of people died on the way to today’s manageability. The same for cancer.

As any cancer or HIV researcher will attest, even in cases of seeming futility, experimental protocols yield vital data for future treatment designs. They also will attest that surprises happen when we least expect them to. Alfie has already surprised everyone by his continued breathing. Imagine if he were given a fair chance.

Fair chances point toward a central reality in biomedical research: You can’t advance the therapeutic ball if you kill all the hard cases.

There is a war on for the soul of humanity. The Culture of Death has been holding high carnival for decades with abortion, and now the slippery slope from physician-assisted suicide, to euthanasia, to outright court-sanctioned murder rooted in a pervasive eugenics. There is no room in this worldview for faith, hope, or love. There is only expedience, and expedience in the place of faith, hope, and love, never solved a biomedical riddle. None of us who has ever labored in a lab was ever driven by expedience sans hope. The work of healing research requires a soul, the kind of soul missing in action in the Gard and Evans decisions. Faith, hope, and love are the forces that sustain our greatest minds in science and medicine. They inspire and sustain in the face of repeated failure and setback.

So what’s it all about, Alfie? It’s about faith, hope, and love, Alfie.

Alfie.


Dr. Gerard Nadal is Science and Health Education Policy Advisor for the Bioethics Defense Fund. He holds a Bachelor of Arts degree in Psychology with a minor in Philosophy from Saint John's University, New York City. After his post-baccalaureate sciences at Columbia University, New York City,  Dr. Nadal returned to Saint John's University where he received his Master of Science in Cellular and Molecular Biology, Master of Philosophy in Biology, and Ph.D. in Molecular Microbiology. Also a member of University Faculty For Life and the Catholic Writers Guild, Dr. Nadal is a columnist for Headline BistroDr. Nadal also serves on several advisory boards, including the Coalition on Abortion/Breast Cancer, Good Counsel Homes, and the Children First Foundation. A Fourth Degree Knight of Columbus and unapologetic Roman Catholic loyal to the Magisterium, Dr. Nadal and his wife home school their three children. He blogs at Coming Home.